Pause passage until the section 9B methodology is published.
Don't vote on a new functional capacity test (s.9B) whose methodology is unpublished and whose Technical Advisory Group does not yet exist.

National Disability Insurance Scheme Amendment Bill 2026
Over one week in May 2026, ANPA surveyed 478 neurodivergent families across every state and territory about the proposed Bill. This is what they told us.
Statement 1 of 4. 478 families spoke.
Listen first. The data follows.
Source: ANPA community survey, 478 responses, May 2026.
Section 01 - The people behind the numbers
478 responses. Every state and territory. Tap a state to hear from it.
Western Australia
“We haven't been meaningfully consulted, and none of us want this.”
- Parent & disabled person, WA
Section 02 - Distribution of responses
From 478 total responses. 17 respondents chose not to share a postcode and are not plotted.
Each dot is a federal electorate. Search a postcode or electorate name to zoom in, or drag and scroll to explore. Hover or tap to read verbatim comments.
VIC - Federal electorate
29 households responded from this electorate.
What respondents flagged
Section 03 - A rare consensus
Source: ANPA community survey, 478 responses across all 8 states and territories, May 2026.
are concerned that changes to how support needs are assessed could make it harder for neurodivergent families to qualify.
“Each person is an individual. You need to look at each case individually and not treat everyone as needing the same level of funding.”
- Parent of an NDIS participant, VIC
foresee increased parent burnout if the Bill proceeds.
“I am burnt out, tired, currently sick, can't work, lost my sense of self worth. Yet as a woman, expected to do more. I just can't do more. I am done.”
- Parent & neurodivergent person, VIC
foresee worsening mental health impacts.
“We are already at our limit. Without support it would feel impossible.”
- Parent, disabled & neurodivergent, VIC
fear families will be expected to provide more unpaid support labour.
“It is unfair and un-Australian to expect the burden and cost of care to shift to parents and carers.”
- Parent & sibling of an NDIS participant, QLD
fear increased child self-harm or suicide risk if supports are reduced.
“Who will be held accountable when people die as a result of this Bill?”
- Parent & neurodivergent person, QLD
Section 04 - The transfer
Each block is one hour of weekly support. Scroll - hours cut from the funded column transfer, unpaid, onto the family.
20 of 20 funded support hours remain. 0 hours per week have transferred to unpaid family labour - 0 hours per year per carer, roughly 0 million hours nationally, worth $0.0 to $0.0 billion every year.
Shift just 1,040 hours a year back onto each female primary carer of a disabled child or young person and that is roughly 0M hours of unpaid labour nationally, worth about $0.0B-$0.0B every year. The saving has not removed the work. It has moved it onto mothers.
Section 05 - A day in the life
Composite stories from survey themes. Names invented. Lives real.

Composite story - regional Queensland
Aunty May & Jay
Six hours on the road for forty-five minutes in a room.
Aunty May is 62 and the primary kinship carer for her grandson Jay, 8, who is autistic and has limited speech. The nearest paediatrician taking new NDIS reviews is two and a half hours away.
Pack the esky, the AAC tablet, the headphones. Jay does best if the car is already running when he wakes.
Arrive early to walk a lap of the carpark. The waiting room fluoros are a known trigger.
Forty-five minutes with the paediatrician. The report will take six weeks.
Home. Aunty May carries Jay up the porch steps asleep. Her knees are not what they were.
The new functional capacity questionnaire asks her to rate Jay on a numeric scale she does not recognise.
“Walk in our shoes for a week. They do not understand.”
Relevant provision
Section 9B of the NDIS Act 2013 (Cth), as inserted by the Bill, allows remote and automated reassessment without local or environmental context.
Survey finding
47% of regional respondents named travel as a primary burden. Multiple families reported drives of more than 3 hours each way to see a disability-competent clinician.
Section 06 - Follow the dominoes
Percentages from ANPA community survey (478 responses, May 2026). Qualitative findings drawn from free-text responses across every state and territory.
Section 07 - What families are most worried about
Section 08 - The human voices
“You do not realise - you have made the future quite terrifying. You need to see us as people, as individuals.”
- Respondent, QLD
Section 09 - The qualitative library
266 open responses from participants, parents, carers, siblings and grandparents who explicitly consented to be quoted. Names, contact details and identifying numbers removed.
Browse by your state
“That NDIS cuts are increasing a rising danger of physical safety in our family. I am in danger of being killed or seriously Injured by my child due to decreased NDIS funding”
“Investing in a strong NDIS also has flow-on a benefit to all Australians – for every dollar spent on the NDIS, the scheme delivers $2.25 back into Australian communities.”
“Early intervention via NDIS had helped my tween stay in contact with her peers socially and physically despite her disabilities and without continued support she will lose all of this progress and I fear will not remain in mainstream education”
“You are seriously impacting social cohesion and creating serious future economic implications.”
“Real people with real lives will be drastically affected by these changes. If you need more money in your budget, tax billionaires and corporations more appropriately.”
“Ndis participants and their families are people, not scape goats, not burdens, not villians. People that deserve to be treated with dignity by a system that is supposed to provide support. Not make it harder to live.”
“Disability is not a choice. Ensuring equal access and supported access to community and society should be available to all including disabled people.”
“Build the lifeboats before sending people overboard. Services have been severely underfunded for a decade due to private companies due to snapping up NDIS money.. any gaps in adequate intervention or family support will have long-lasting impacts.”
“I am a late diagnosed mum at 26. I didn’t ask to be born autistic and yet I am and I fight for support for myself because my parents didn’t and I now fight for my kids. Autistic people aren’t going anywhere so stop making them suffer.”
“Child in autistic burnout & can't go to school/leave house. I'm a low-income single parent; had to reduce work. Too scared to apply for a support worker in case her plan was cut. We should be able to ask for help w/o fear of losing what little we have.”
“It is unfair and unAustralian to expect the burden and cost of care to shift to parents and carers.”
“I have a non disabled child as well as a disabled one. The workload associated with the disabled child is exponentially more than what the non-disabled child required at the same age.”
“The NDIS has been life changing for us. We've gone from every hour of every day being a complete war zone to 3-5 episodes a day. This is a huge improvement. We've been able to access specialist support that we simply could not afford without the NDIS”
“extensive knowledge of the system due to my previous employment in public health allied health assisting with NDIS goal setting & planning for supports & funding as part of multidisciplinary team of medical, nursing, speech pathology, ot, physiothera”
“Each person is an individual. You need to look at each case individually and not treat everyone as needing the same level of funding.”
“Autism is a lifelong disability. Autistics will die without support.”
“Who will be held accountable when people die as a result of this bill?”
“We haven’t been meaningfully consulted, and none of us want this.”
“I'd love to tell my story to media but don't know how especially when I want me de identified to protect my child's privacy”
“We are already at our limit. Without support it would feel impossible.”
“Families with children with disabilities are stretched financially. Have more medical needs and less ability to work. Supporting families and people with disabilities adds money to the economy rather than trapping people in a poverty society.”
“save money by not defending ndis c**p decisions that get overturned at tribunal - save money by paying parent well for caring ($32k for Centrelink) - rather than SIL $400k+!”
“Every day is already a nightmare. I’ll need to relinquish my children if politicians strip the NDIS back any further. And if I have to do that, there’s not much point in carrying on, is there? These children deserve human rights. Their mother does too.”
“It is *essential* that whatever changes are made to the ndis the changes include measuring and *publicly* reporting 6 monthly or more often on how many disabled people have died, for both participants and people forced into other programs.”
Section 10 - Women's march for the NDIS
When support is removed, someone still has to do the work. Usually women. Sunday 21 June, 2pm - on foot, by wheel, by whatever works. Not protest. Evidence.
21 Jun
Sunday
2pm
Local time
All
Welcome

Join the march
Wheels, walkers, prams, mobility aids, assistance dogs - all welcome.
Section 11 - What ANPA is asking Parliament to do
ANPA's position: OPPOSE
Want the evidence base?
The full case for continued NDIS supports, plus live Harm Tracker data.
Read the evidenceDon't vote on a new functional capacity test (s.9B) whose methodology is unpublished and whose Technical Advisory Group does not yet exist.
Remove proposed s.50A(4). Every participant must keep the right to internal and AAT review of decisions about their own plan.
Automated systems must not take final administrative actions affecting access to support without meaningful, accessible human review.
Care historically funded by the scheme must not be silently reassigned to families - overwhelmingly to mothers.
The Minister must not be able to reduce individual participants' funding by legislative instrument without independent oversight and merits review.
CRPD, CRC, gender and First Nations impact assessments on every operative provision - before the Bill is debated, not after.

A closing statement
The community has spoken. Parliament must listen.